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Home Uncertainty & Complexity

Engagement, Not Satisfaction

Patient satisfaction is the oldest and most widely used metric. It's also the most misleading.

Daily Remedy by Daily Remedy
November 27, 2022
in Uncertainty & Complexity
0
Engagement, Not Satisfaction

National Cancer Institute

Healthcare is staring at the abyss, waiting for the abyss to gaze back. Healthcare will have to wait.

The frequently used analogy of the abyss was first proposed by Nietzsche to symbolize our internal battle for self-realization. Until we see who we are, what we’re fighting against, we’ll never understand ourselves.

The same applies to healthcare. In recent years, the pursuit of medical data and technology has culminated in an overabundance of metrics. Whatever could be measured was quantified until the only things that mattered were what could be measured. For years, we called this progress. Now we see it creates as much harm as good.

“Not everything that matters can be measured and not everything that can be measured matters”, quipped Albert Einstein. He was alluding to his general life values, but his words are equally apt for healthcare. Take the infamous patient satisfaction score, one of the oldest and most widely used metrics in healthcare. It measures how satisfied a patient is with his or her care experience.

It’s an application of the net promoter scores developed by consulting firm Bain & Company in the 1980s. Back then, customer loyalty was everything. With a loyal customer, a brand apparel company could count on consistent sales and word-of-mouth referrals. Even today, it’s the ultimate competitive advantage.

But a loyal customer isn’t comparable to a loyal patient, and by conflating the two, we trek down a murky path of moral hazards that should have remained unthreaded. Patient satisfaction wasn’t originally intended to measure the patient experience. It was designed to gauge how loyal patients would be following the care they received. In short order, loyalty became a proxy for quality of care.

A satisfied patient is a loyal patient and would keep coming back. While that seems logical enough, at least in the minds of many hospital administrators, it’s not correct. It’s just what the measurements show, so we think the numbers portray an accurate representation of the patient experience.

But like Einstein said, what matters is what’s not measured, the things outside of the numbers. Patient satisfaction only matters if you think of healthcare as a retail experience. So naturally, you would seek brand familiarity, since the familiar is appealing to the masses. However, healthcare is anything but familiar. In fact, it’s an exercise in managing uncertainty.

You don’t go to the hospital because you have appendicitis. You go to the hospital because you have right, lower abdominal pain that then gets diagnosed as appendicitis.

Few consumers shop for brands or styles that they implicitly like on their own accord. Most rely on trend setters to tell them what’s in style and then they purchase those clothes accordingly.

The decision-making is different because the level of uncertainty differs. As a result, principles of consumerism don’t apply and the concept of loyalty varies from the clinical experience to the retail world. Therefore, instead of measuring satisfaction, we should measure engagement.

Patient satisfaction is passive. It’s a measure of how the patient was treated, what services were offered. It’s about what was given to the patient, like guests at a hotel. Engagement is active. It measures how actively the patient participated in the care that transpired.

An engaged patient has better clinical outcomes than a satisfied patient. Contrary to what was said earlier about metrics, the data verifies as much – an engaged patient who struggles through recovery has better post-operative outcomes than a patient who was highly satisfied by being pandered to. More to the original point, an engaged patient is far more loyal than someone who was merely satisfied.

This goes back to the foundational principles of behavioral economics. We gravitate toward the easy and convenient, but we respect the hard and challenging. And in healthcare, we derive loyalty out of what we respect.

Shopping is easy, that’s why it’s a consumer experience. It should be easy. Healthcare is hard. It’s dynamic and uncertain. These are the conditions that call for a highly engaged patient. Take the post-operative patient who is recovering from an appendectomy. She would benefit from active breathing exercises and physical therapy. Sure, she would love to relax, enjoy some pain relief, and commiserate alongside her healing wounds over some daytime television. Such a patient would be highly satisfied.

In contrast, a highly engaged patient would muster the grit to engage in the recovery process. There may be some difficult moments in challenging her to get out of bed, but in the end, she would have appreciated the encouragement and the challenges. In fact, those struggles would prove quite memorable for the patient. Those are the memories that engender loyalty in medicine.

It’s time healthcare rids itself of this pathological obsession with convenience metrics, assuming consumerism defines good clinical care. Healthcare should look at itself for what it is, an abyss of uncertainty. Hopefully then, the abyss will finally gaze back.

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Daily Remedy

Dr. Jay K Joshi serves as the editor-in-chief of Daily Remedy. He is a serial entrepreneur and sought after thought-leader for matters related to healthcare innovation and medical jurisprudence. He has published articles on a variety of healthcare topics in both peer-reviewed journals and trade publications. His legal writings include amicus curiae briefs prepared for prominent federal healthcare cases.

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Videos

This conversation focuses on debunking myths surrounding GLP-1 medications, particularly the misinformation about their association with pancreatic cancer. The speaker emphasizes the importance of understanding clinical study designs, especially the distinction between observational studies and randomized controlled trials. The discussion highlights the need for patients to critically evaluate the sources of information regarding medication side effects and to empower themselves in their healthcare decisions.

Takeaways
GLP-1 medications are not linked to pancreatic cancer.
Peer-reviewed studies debunk misinformation about GLP-1s.
Anecdotal evidence is not reliable for general conclusions.
Observational studies have limitations in generalizability.
Understanding study design is crucial for evaluating claims.
Symptoms should be discussed in the context of clinical conditions.
Not all side effects reported are relevant to every patient.
Observational studies can provide valuable insights but are context-specific.
Patients should critically assess the relevance of studies to their own experiences.
Engagement in discussions about specific studies can enhance understanding

Chapters
00:00
Debunking GLP-1 Medication Myths
02:56
Understanding Clinical Study Designs
05:54
The Role of Observational Studies in Healthcare
Debunking Myths About GLP-1 Medications
YouTube Video DM9Do_V6_sU
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BIIB080 in Mild Alzheimer’s Disease: What a Phase 1b Exploratory Clinical Analysis Can—and Cannot—Tell Us

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Can lowering tau biology translate into a clinically meaningful slowing of decline in people with early symptomatic Alzheimer’s disease? That is the practical question behind BIIB080, an intrathecal antisense therapy designed to reduce production of tau protein by targeting the tau gene transcript. In a phase 1b program originally designed for safety and dosing, investigators later examined cognitive, functional, and global outcomes as exploratory endpoints. The clinical question matters because current disease-modifying options primarily target amyloid, while tau pathology tracks...

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