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    Can you tell when your provider does not trust you?

    January 18, 2026
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    National health polls: trust in healthcare system accuracy?

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    Which health policy issues matter the most to Republican voters in the primaries?

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Home Perspectives

7 Shocking Reasons Why You’re Your Best Advocate

Self-advocacy, while crucial, comes with a caveat

Twinkle VanFleet by Twinkle VanFleet
April 3, 2024
in Perspectives
0
7 Shocking Reasons Why You’re Your Best Advocate

Andrej Lišakov

In the complex world of healthcare, standing up for yourself is not just beneficial; it’s essential. Echoing the wisdom of advocates and experts alike, the mantra “never stop advocating for yourself” plays a crucial role in our interactions with medical professionals and institutions. Yet, effective self-advocacy in healthcare is nuanced, requiring both courage and caution. Here, we meld insights from various thought leaders with practical tips to empower you in your healthcare journey.

Understand Your Health Rights

The first step in being your own advocate is to understand your rights and responsibilities as a patient. Knowledge is power, particularly in healthcare settings. Familiarize yourself with your medical conditions, treatment options, and the rights you hold within your healthcare system. This foundation allows you to engage confidently and constructively with medical professionals.

Communicate Effectively and Respectfully

Effective communication is the cornerstone of successful advocacy. It’s about expressing your health concerns, questions, and preferences clearly and respectfully. Prepare for appointments by listing down symptoms, questions, and any research you’ve done. Approach conversations with healthcare providers as a two-way dialogue, where your voice is heard, and your concerns are addressed.

Seek and Utilize Feedback

Feedback from healthcare providers can offer valuable insights into your health and treatment options. Be open to discussions and ask for clarifications or alternatives if something isn’t clear or doesn’t sit right with you. This openness to feedback can also extend to seeking second opinions, particularly when facing significant health decisions.

Build a Supportive Healthcare Team

No patient is an island. Having a supportive team, whether it’s made up of family, friends, or patient advocacy groups, can bolster your confidence and provide additional perspectives on your healthcare journey. Additionally, consider your healthcare providers as part of this team. A strong patient-provider relationship is based on mutual respect and understanding.

Leverage Technology for Better Advocacy

In today’s digital age, technology can significantly enhance your self-advocacy efforts. From accessing electronic health records to joining online support groups, digital tools can provide you with a wealth of information and support. They offer a platform to share experiences, seek advice, and connect with others navigating similar health challenges.

Prioritize Your Well-being

Ultimately, advocating for yourself in healthcare is about prioritizing your well-being. It means making informed decisions, respecting your body’s limits, and setting boundaries with healthcare providers when necessary. Remember, while healthcare professionals are experts in their field, you are the expert on your body and your health.

Embark on Your Advocacy Journey

Becoming an effective self-advocate in healthcare doesn’t happen overnight. It requires patience, persistence, and a willingness to learn and adapt. Start by taking small steps, armed with the knowledge that you have the right to understand and influence your healthcare. Your voice matters, and by advocating for yourself, you can ensure that your healthcare journey aligns with your needs, values, and preferences.

In synthesizing these insights, the goal is to provide a roadmap for effective self-advocacy in healthcare that honors the complexity of navigating medical systems while empowering you to take control of your health journey.

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Twinkle VanFleet

Twinkle VanFleet

Twinkle VanFleet is the Vice President of Operations at Stronger Than Pain and a former Medtronic Ambassador at Medtronic, Inc. She lives in Elk Grove, California.

Comments 0

  1. Venus Usher says:
    2 years ago

    I couldn’t have said it better myself. I’m finding that when you start advocating for one thing, many things follow. I’m now advocating for people with ptsd and mental health issues, as well as chronic pain and recovery. One big group of advocates coming together ❤️

    Reply

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Videos

In this episode, the host discusses the significance of large language models (LLMs) in healthcare, their applications, and the challenges they face. The conversation highlights the importance of simplicity in model design and the necessity of integrating patient feedback to enhance the effectiveness of LLMs in clinical settings.

Takeaways
LLMs are becoming integral in healthcare.
They can help determine costs and service options.
Hallucination in LLMs can lead to misinformation.
LLMs can produce inconsistent answers based on input.
Simplicity in LLMs is often more effective than complexity.
Patient behavior should guide LLM development.
Integrating patient feedback is crucial for accuracy.
Pre-training models with patient input enhances relevance.
Healthcare providers must understand LLM limitations.
The best LLMs will focus on patient-centered care.

Chapters

00:00 Introduction to LLMs in Healthcare
05:16 The Importance of Simplicity in LLMs
The Future of LLMs in HealthcareDaily Remedy
YouTube Video U1u-IYdpeEk
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AI Regulation and Deployment Is Now a Core Healthcare Issue

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Ambient Artificial Intelligence Clinical Documentation: Workflow Support with Emerging Governance Risk

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Health systems are increasingly deploying ambient artificial intelligence tools that listen to clinical encounters and automatically generate draft visit notes. These systems are intended to reduce documentation burden and allow clinicians to focus more directly on patient interaction. At the same time, they raise unresolved questions about patient consent, data handling, factual accuracy, and legal responsibility for machine‑generated records. Recent policy discussions and legal actions suggest that adoption is moving faster than formal oversight frameworks. The practical clinical question is...

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