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Lived Experience is Data

Data is never data alone. It exists through an interpretation

Daily Remedy by Daily Remedy
April 19, 2023
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Lived Experience is Data

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Data is never data alone. It exists through an interpretation. The two are forever connected: data and its interpretation. We miss this when we’re arguing over the numbers, but what we interpret defines how we react to the data.

The opioid litigation settlements have garnered gargantuan amounts of funds for communities across the nation. But when spread out and averaged over time, the numbers thin out. Critical decisions about how to spend the money will determine how effective the settlement dollars prove to be. This requires, above all else, correctly interpreting the data.

We need the lived experiences of patients. Their interpretations make sense out of the data. Think of this way: numbers tell us about a specific event. But they never explain how multiple events relate. Those relationships come from lived experiences.

If we take two rural towns, both experiencing layoffs, and measure overdose rates, we’ll likely find similar metrics based on similar demographics. That only tells us the result of how the overdose crisis affected both towns. It doesn’t tell us how addictions are likely to form or what patterns of behavior are likely to lead someone down the path of addiction. Those are the lived experiences.

Lived experiences tell us the story. Data points tell us individual events. Those events are meaningless without the context of a narrative. In engineering parlance, we call this thinking in systems.

In systems, we focus on the interactions, the connections between events. That’s the actual story of addiction: a person’s relationship with his or her community. Each town has a different array of interactions that lead to distinct patterns of behavior. Within this complex framework, a patient with substance use dependency can turn into an addict. Just as well, an addict can turn into a patient with substance use dependency. There’s no data point that explains it all, because it can’t be explained through numbers.

We need stories. We need to hear from those most affected. Their stories aren’t just important to hear, they’re relevant for making critical decisions, such as deciding whether to invest in more freely available fentanyl strips or to offer more Narcan dispensaries. That decision, as nuanced as it may appear to be, will sway the scales toward fewer addictions. It may seem negligible. But that’s because you lack the lived experiences to see how impactful those subtleties can be.

Those who lived through the opioid crisis proudly carry their stories like scars of honor. Their lived experiences make them subject matter experts. In war, we heed the advice of soldiers because they lived through combat. Their experience becomes their expertise. That’s why we award medals for combat.

It’s time we give the same respect to those with lived experiences in the opioid crisis. Instead, we see these individuals written off as grief stricken or lacking the objective disposition necessary to inform policy decisions. That perspective misses the mark.

Nothing about addiction is objective. Even the clinical metrics we use to measure it are subjective. This is why we struggle to define, diagnose, and treat it. Addiction defies our innate tendency to objectify things in healthcare. Instead of acknowledging this, and looking at addiction through lived experiences, we look for something measurable, even if it’s a poor marker of addiction.

When it comes to money and metrics in the opioid epidemic, we need fewer numbers and more lived experiences. Remember, data is never data alone. It exists through an interpretation.

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Daily Remedy

Dr. Jay K Joshi serves as the editor-in-chief of Daily Remedy. He is a serial entrepreneur and sought after thought-leader for matters related to healthcare innovation and medical jurisprudence. He has published articles on a variety of healthcare topics in both peer-reviewed journals and trade publications. His legal writings include amicus curiae briefs prepared for prominent federal healthcare cases.

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Videos

Summary

In this episode of the Daily Remedy Podcast, Dr. Joshi discusses the rapidly changing landscape of healthcare laws and trends, emphasizing the importance of understanding the distinction between statutory and case law. The conversation highlights the role of case law in shaping healthcare practices and encourages physicians to engage in legal advocacy by writing legal briefs to influence case law outcomes. The episode underscores the need for physicians to actively participate in the legal processes that govern their practice.

Takeaways

Healthcare trends are rapidly changing and confusing.
Understanding statutory and case law is crucial for physicians.
Case law can overturn existing statutory laws.
Physicians can influence healthcare law through legal briefs.
Writing legal briefs doesn't require extensive legal knowledge.
Narrative formats can be effective in legal briefs.
Physicians should express their perspectives in legal matters.
Engagement in legal advocacy is essential for physicians.
The interpretation of case law affects medical practice.
Physicians need to be part of the legal conversation.
Physicians: Write thy amicus briefs!
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